blank header

vitiligo others

People we need to discuss this. Seriously.

It seems like no one wants to admit that we’re not exactly used to seeing a black person turn white. Most of us haven’t experienced that firsthand, so we’re left scratching our heads. Someone’s physical features and complexion were designed that way and make sense as an ensemble. If you’ve ever strolled past Rita after her six-week summer getaway without recognizing her, you get the idea. If Rita decided to get a nose job or two, that would really shake things up for everyone in her orbit.

Vitiligo plays mind tricks on us: Has his chin changed, or does it merely appear different due to a new complexion? Are his lips different or his bone structure or his fingers or are we just not accustomed to this new look? Is it a hefty dose of cosmetic surgery, or are we simply being fooled by an optical illusion? Perhaps it’s a bit of both?

The truth is, we’re in uncharted territory here. While we might have seen vitiligo before, we’ve never witnessed someone actively concealing patches to achieve a uniform look, all while transforming right before our eyes.

We don’t understand, and as a result feel discomfort, offense, or even fear. We crave logical explanations, and cosmetic surgery starts to sound like a reasonable theory to rationalize our unease.

Living with this skin condition in the spotlight must be incredibly tough. Not only do you deal with the trauma of an uncontrollable change in appearance, but you also face the added pain of bullying or, even worse, the assumption that you’re doing this on purpose. You might feel ashamed and vulnerable, making you want to hide. Yet the reminders are relentless.

This could turn into a vicious cycle: the more someone hides, the less we understand, which leads to more blame and further withdrawal.

We need to step up our game. It might be beneficial to take a moment, look at other people, and gain a broader perspective. If you’re unsure about the role vitiligo played in Michael Jackson’s life, looking at others with the condition might lead you to reconsider. The transformation in their appearances before and after is really amazing.

arthur wright

Ebony magazine 11/1978

I think he passes for Asian. I would have guessed that he underwent some cosmetic procedures.

Ron harris: The Man who turned white

Source

Irony of ironies: On the cover of this issue is Diana Ross, on the occasion of “The Wiz” being released.

Safe to say, Michael knew about Arthur Wright’s story.

In the bathroom of my apartment the makeup looked even, the same color as my face. But in the sunlight it was a different color than my skin. I looked like a clown. I ran back to my apartment and cried.

What followed that memorable day was eight years of suffering, Wright says –eight years of being laughed at, talked about and singled out in crowds. They were years of applying facial makeup daily. Eventually, when the disease spread to the chest, thighs, arms and legs, makeup had to be applied to Wright’s entire body before he appeared on stage. Meanwhile he consulted eight dermatologists in New York, Chicago and Washington, and even in Europe. Each offered a different cure. None worked. There were numerous pills, lotions, creams and balms which purportedly would restore Wright’s skin to its once rich brown color. None worked. There was deep depression and a short barbiturate addiction, the results of a cure prescribed by one dermatologist.  There was the loss of friends, the loss of lovers, and there was fear – fear that the makeup mask he so diligently applied each morning would be discovered, his condition revealed, and the rejection that usually followed the unmasking repeated.

[…]

Under Dr. Stolar’s care he underwent depigmentation, a process of removing color from the skin by applying a special cream. Dr. Stolar has prescribed the treatment for more than 50 Blacks afflicted with the disease.

“It took three years to make the decision to have that done,” Wright says. “I just couldn’t believe that there was not some way I could get my own color back. Plus, I didn’t want people thinking that I wanted to be White. During that time everything was ‘Black Is Beautiful’ and ‘Be proud of being Black,’ and here I was getting ready to undergo a process that would turn me white. But I decided that I couldn’t live as I was for the rest of my life. I couldn’t continue my life running away from people, living partly as a hermit. I had to do something, and depigmentation seemed to me to be the only way out.”

It took five years for the process to be completed, but Wright stopped wearing makeup after only three months when his face became all white. “I was so happy not to wear another speck of makeup that I didn’t know what to do,” he says, clasping his hands in a moment of jubilation. “You have no idea what a relief that was. I was so glad to be released from that bondage. It had become such a routine that it was as natural as breathing, as brushing my teeth or combing my hair. Every day when I went to the bathroom for the ritual, it was like standing in front of a mirror behind someone else, making that person up and then superimposing myself. You see, without the makeup, it wasn’t me. I had to recognize my own face before I could go out, and that person with all those spots was not me.”

[…]

Wright says he is no longer the focus of stares and snide remarks, though he admits, “I get the strangest looks from Orientals.

[…]

I was a very outgoing person when this happened, always on the go, doing things and loving people. But after this I became that sort of hermit. I lost a lot of friends, and that hurt. I was afraid of people, afraid of being rejected. I had no sex life, for years and very little when I started back. I ran away from anybody who showed any interest in me. I didn’t want to be rejected, and I couldn’t know if they would accept me with those spots all over my body.

“I met people and they didn’t want to shake my hand because of the spots. I was a freak. When I rode the subway people would laugh, giggle and point at me, because when my makeup came off my lips they were pink and there I was with this dark complexion and pink lips. I found that a lot of people that I thought were my friends were just phony people, and I started getting rid of all phony people around me. A lot of people let me down because they fitted in the category that I didn’t think they fitted in. The whole thing caused me to lose faith in people and distrust them.

Leave a Reply

Your email address will not be published. Required fields are marked *